Today has been a fantastic day. Serious is smiling and playing and blowing raspberries! We haven't been able to get her to laugh yet, but we will take the smiles! :)
First playing and smiling since before her surgery!
We were able to take her for a wagon ride around the CICU and to the hospital floor. She was able to see fish and the glass overhang wall. She sat there, very content getting bubbles blown at her and being pulled around the floor. The head nurse saw her again and remembered her name and started talking to her. I am constantly amazed at the care we have been receiving here. The nurses we had last night came into her room and was asking how she was doing and tried to get smiles.
Just riding around in the wagon wore her out. So we went back a little early and let her sleep.
We were able to move over to the Ronald McDonald house this morning as well. We did have a causualty. My new pillows and 1,000 thread count pillow case was left in the hospitality room... A man hunt is starting first thing in the morning. ;) My wireless mouse is also MIA. I will have to check in my truck in the morning as well.
They removed her blood pressure cath this morning. It was stitched into her so that it couldn't be removed easily. They had to cut the stitches and then remove the cath. They bandaged up her wrist with pressure tape. Later in the afternoon they removed her chest tubes. These tubes collected the drainage from around her heart. She also had wires connected to her natural pacemaker in her heart, just in case they had to regulate her heartbeats after surgery. Those were also removed today. Her chest tube was stitched into her as well. They removed all those and stitched up her hole. She was immensely happier about that. Apparently they are extremely painful and hurt just to breathe. We haven't had to ask for any pain medication for her since they removed them. Which is a huge blessing to not have to watch your tiny infant child writhing in pain and not being able to help them.
She also had an I.V. into her jugular vein. They kept that in until this afternoon. They wanted to run some genetic testing to make sure that she didn't have any other defects. She is slightly delayed in gross motor skills. Her therapist is very confident that her heart and her delay are directly connected and expects to see her sprout right up there. This I.V. allowed them to be able to take blood without having to stick her again to get the amount of blood they needed to run the tests. They removed this I.V. shortly after getting the blood. The bandage was irritating her, so they were able to remove that as well as the oxygen stickers too. So, no more tubes and wires in her! She was MUCH happier!
Serious was able to watch a few movies on the iPad today. We propped it up and she spun her little happy feet while she watched her movies. She has been such a trooper. I am astonished at her recovery. The nurses and doctors are also impressed with it. God has been absolutely amazing with her care. He's been meticulously knitting her back together and holding her gently in His hands.
We bought her a Willow Tree *love* figurine at the gift shop downstairs, called Bright Star. The caption was "Reflecting a light from within." It fit her perfect. Her name means "gift from the stars."
My dad likes a Christian speaker named Lou Gigleo. He's a lot like Ravi Zacharias and is equally intense. Lou calls God, "the star breather." The figurine is an angel holding a star in her hands. Serious' open heart surgery has touched so many lives, despite the miles between all our hearts. I pray that this whole thing reflects God's glory to all those involved. The caption of her Bright Star is just perfect. God is that light. I pray that she is reminded every time she looks in the mirror that God healed her heart and now she gets to wear the mark of that miracle for the rest of her life. Just like mommies get to proudly wear their mommy badge of honor in the form of stretch marks. Now she gets the chance to tell everyone who asks about her scar about the healing hand of their Almighty Creator. How He saved her life by keeping her alive for thirteen months with a broken heart and then healed it. It sends shivers down my spine. My oldest daughter, Sparkle, has seen and talked with angels all her life. That is one was that she is touched by God. This is Serious'. What better way to speak to her, than through her heart, where He one day will live.
I feel intensely blessed to have been able to go through all this. As terrifying as it has been, I have seen so many things that spoke directly to my heart about God's personality and His unfailing faithfulness. I have never been so broken in all my life. Nothing compares to having something life-threatening happen to your children. I have seen people who I thought didn't really care about my family, fall all over themselves to help in some way. But I have also seen people who I thought were close friends, not even care a second. Not show that they gave a hoot if my child lived or died. It was very sad to realize these things about people I loved and thought loved us too. I will be re-evaluating my friendships with these people, so it was also a blessing. God is truly amazing. I will post pictures tomorrow about today's activities. I am exhausted and the stone bed is calling my name, no matter how hard it is to sleep on it.
Right after I posted this the first time, we got the news that they were going to move us upstairs to CPCU. Which is recovery. Nadia was doing so well and they got a little baby life-flighted in and they really needed the room. So, of course, we told them absolutely! I really loved the CICU because it was so well monitored and I was nervous coming upstairs where they aren't monitored as well. But, she doesn't need the monitoring as much anywhere, because she really is soaring through this recovery! So here we are, moving upstairs!